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ADVICE ON OPTIC NERVE HYPOPLASIA / BLIND BABY SUPPORT
Waterfall, KwaZulu-Natal - South Africa

ADVICE ON OPTIC NERVE HYPOPLASIA / BLIND BABY SUPPORT Waterfall, KwaZulu-Natal - South Africa

Available: 9 yrs, 2 ms ago
Contact: karen muller
0833281938

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ADVICE ON OPTIC NERVE HYPOPLASIA / BLIND BABY SUPPORT Waterfall, KwaZulu-Natal - South Africa

Description

Optic Nerve Hypoplasia (ONH) / Septo Optic Dysplasia (SOD) by Karen Muller

ONH blindness is a totally different type of blindness to Retinaopathy. Children with Retinaopathy walk, talk and chew their food and function normally.
With ONH /SOD blindness, there are over a million or so nerves in the optic nerve which are underdeveloped. These children are born with either the midline portion of the brain missing (septum pecidulum) or partial / full Agenisis of the Corpus Colusum of the brain .
They suffer with the following:
Hypopituritism - the Pituitary gland is underdeveloped so the normal function of hormones does not take place. Normal hormones do not get produced such as:
Thyroxine for the Thyroid hormone which regulates metabolism,
Cortisol hormone which is a stress hormone which ensures that when people are sick or going under anaesthetic thei,r body can cope with the stress or shock,
And the Growth Hormone .

Spasm type seizures which can start from any age , some kids / adults have full epileptic fits

Bad constipation from birth and cramps can get them screaming the whole day

They are texture sensitive and some kids do not chew there food so pureed food is a must. Some kids are picky eaters if they can chew and would survive on chips or biscuits only. Texture sensitivity to chewing is also a problem and there foods need to be mashed.

It’s important to see an ENDOCRINIST ASAP. They need blood tests every 6 mths to see how there system is coping, change can happen overnight .
Some ONH kids do not walk or talk, like my son.

DIABETES INSIPIDUS called D1 (or also known as water diabetes). This is NEVER discussed under any type of diabetes either. Only insulin diabetes (high blood glucose) is always spoken about or described in articles. THERE IS A DIFFERENCE BETWEEN DIABETES INSIPIDUS AND DIABETES MILLITIS .

D1 is a sodium imbalance in the body, similar to normal sugar diabetes in the same way they urinate and excessive water intake, yet ONH kids do not know how to process the SODIUM . E.g., Your body has a complex system for balancing the volume and composition of body fluids. Your kidneys remove extra body fluids from your bloodstream. This fluid waste is stored in the bladder as urine. If your fluid regulation system is working properly, your kidneys make less urine to conserve fluid when the body is losing water. Your kidneys also make less urine at night when the body’s metabolic processes are slower there system.

In order to keep the volume and composition of body fluids balanced, the rate of fluid intake is governed by thirst, and the rate of excretion is governed by the production of antidiuretic hormone (ADH), also called vasopressin. This hormone is made in the hypothalamus, a small gland located in the base of the brain. ADH is stored in the nearby pituitary gland and released from it into the bloodstream when necessary. When ADH reaches the kidneys, it directs the kidneys to concentrate the urine by returning excess water to the bloodstream and therefore make less urine.
DI occurs when this precise system for regulating the kidneys’ handling of fluids is disrupted. The most common form of clinically serious DI, central DI, results from damage to the pituitary gland, which disrupts the normal storage and release of ADH. Another form, nephrogenic DI, results when the kidneys are unable to respond to ADH. Rarer forms occur because of a defect in the thirst mechanism (dipsogenic DI) or during pregnancy (gestational DI).

At 2 months old my son Tyrese was diagnosed with ONH . His eyes had the jumpy look (nystagmus) and his paediatric requested a MRI SCAN which diagnosed this.

I am offering my support to any moms out there or future moms searching for help.
Have you ever thought of taking him to China for umbilical cord stem cells ?? Many moms from around the world are taking there kids to China and with huge success stories. You and your hubby and your child getting the stem cells stay in the hospital for free, site seeing and daily shopping visits, tours are allowed with your child as well. Every day physio, twice a day and other Chinese massages are given to your child as well as the stem cells. I never spent one cent getting all the money needed. Air tickets to China were also free by a airline . Nothing is impossible. I always say getting stems for your child, and letting the community raise the needed funds, will benefit your child with vision. If you need more info , please email me ok. See my links below of our journey to China and Beike Biotech. I am a Patient Representative for Beike, so can help your child get accepted

BEIKE BIOTECH

INTERNATIONAL PATIENT REPRESENTATIVE

SOUTH AFRICA

karenkzn@telkomsa.net

http://www.babyjellybeans.com/web/do/site?ID=19003 (password to enter is tyrese)

http://www.beikeinfocenter.com/wp-content/uploads/Beike-Information-Guide.pdf

http://www.sinohotel.com/english/hotels/qingdao_chengyang_district/index.html

(Info on Beike Biotech and stem cells )

http://www.facebook.com/profile.php?id=1093024737 (Facebook Profile )

http://www.facebook.com/karen.muller.986
SKYPE - dellybelly4


Karen Muller


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